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We got to the hospital today at 1 and started his treatment at 3:40.  They had given him some Benadryl prior to the infusion to try to control any kind of allergic reaction.  It made him really, really tired.  He was actually out cold for most of the procedure.  The great news is he didn't have any bad reactions.  No fever, blood pressure, rash, lung or pain problems.  He was able to have the entire infusion in just under 3 hours.  He had to be monitored for an hour afterwards too.  After they took his IV out (which he posted a picture of this on Instagram), he got his shoes on, went to the bathroom & asked if we could go to Five Guys for dinner.  Needless to say, we got the car & headed to Hyde Park so he could dive into a bacon cheeseburger. 

So, here's where we are at right now.  He has to have another treatment at 4p on the 25th and a third one the day after Thanksgiving.  At some point they are going to start to taper him off of his steroids and do an MRI to evaluate his inflammation.  All of this, while stressful & scary, isn't on my radar at this very moment.  Having him home in his own bed, knowing he's headed to school tomorrow & to a soccer field on Saturday is giving me a huge sense of peace & relief. 

Even though things at this very moment are good,  please try to continue to keep our "biggest-little man" in your prayers.  We'll keep you posted over the next couple weeks with his progress. 

xo